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Patients' page

Patients' page: under development!

We'd like to dedicate this page to patients themselves, and to the things that people told us helped them with their recovery. Some people told us about a renewed sense of purpose or creativity; some tell us about a different sense of spirituality (not just in the traditional sense), and others feel a strong urge to "give something back". 

We know from speaking with people that  different things can help eg writing, poetry, reading inspirational books, drawing, painting, film-making, etc. Others resume previous hobbies such as photography, or take up new activities such as gardening, volunteering, etc. 

We'd like to help make patients and their families aware of anything and everything that helps! Please do get in touch if you'd like to share your thoughts and experiences, or if you'd like to share some of the materials that helped you on this website. We'd love to hear from you. 





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Video: Abide With Me.mp4

Abide with me

Web Link: BBC

Access BBC Radio programmes via the BBC site

Web Link: BBC iPlayer

Access BBC programmes via the BBC iPlayer service

Web Link: Bereavement

Sadly, not everyone survives Intensive Care. We are very sorry for your loss. This link will take you to the NHS Choices page on bereavement. It offers advice and support for carers and family members, including siblings (brothers and sisters) and young people.It also gives practical advice on benefits and allowances.

Web Link: Carers' Assessment (NHS Choices)

When someone ends up Intensive Care, close family and friends are also affected. They play a very important part in the patients' recovery after they go home.Given the importance of their involvement, the government has ensured that they have certain rights that, by law, must be met. Close family or close friends are often called "carers" by health and social care services, and most have a legal right to an assessment of their own needs. That includes things like...

Web Link: Citizens Advice (Scotland)

This link will take you to the Citizens Advice Bureau. They can provide information and advice on a wide range of money, legal and health issues including: Money & debt Benefits Employment Housing Family problems Health Services Legal rights & responsibilities For advice in Scotland, go to https://www.citizensadvice.org.uk/scotland/ For advice in England, go to https://www.citizensadvice.org.uk/ For advice in Northern Ireland, go to...

Web Link: Community Care Assessment

If you or the person you're looking after has difficulty with personal care (washing and dressing, for example), you could consider getting support from social services by having a community care assessment of your needs.The assessment looks at what type of services are needed. This might include a range of things, from from aids and home adaptations to visits from care workers or residential care.

Web Link: Critical Care Patient Liaison Committee

This link will take you to the Patients' and Relatives' page of the Intensive Care Society.It provides general information on what to expect when visiting the Intensive Care Unit, transfer to the general ward, rehabilitation and getting home (hospital discharge).

Web Link: Edinburgh Critical Care Research Group

This link will take you to the webpage of Edinburgh Critical Care Research Group. It tells you about who we are and the type of research that we do.

Web Link: Edinburgh Leisure

This link will take you to the website of Edinburgh Leisure.They have some really useful physical activity and health programmes.