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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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Web Link: Intensive care: Patients' experiences

Text from site: In this section you can find out about the experience of being in intensive care by seeing and hearing people share their personal stories on film. Researchers travelled all around the UK to talk to 40 people in their own homes. Find out what people said about issues such as regaining consciousness, emotional experiences, recovery and impact on lifestyle. We hope you find the information helpful and reassuring. You may also be interested in our section on Intensive...

Web Link: Leaving Critical Care: your ongoing care and recovery

Text from site: This booklet contains information for you and your family about your transfer from the Critical Care Unit. It also contains advice on any concerns you might have, now you are getting better. Not everyone will experience all or any of the signs or symptoms described in the booklet; the intention is to provide you with as much information as we can to ensure that your physical and psychological recovery is as successful as possible. Please speak to your doctors and nurses if...

Web Link: Lothian Phoenix Wheelchair Basketball

Lothian Phoenix wheelchair basketball takes place at Armadale Academy on Tuesday and Thursday nights from 7pm until 9pm. Please follow the link for more details. 

External Video: Louise describes her critical illness and the process of getting better

In this video clip, Louise a former Intensive Care patient talks about her experiences of critical illness five years on and the process of getting better and getting on with her life. You can read interviews,listen to voice recordings and watch clips of other patients' experiences of Intensive Care by using the link to a free website called Healthtalkonline: http://healthtalkonline.org/search/all/intensive%20care

Web Link: Managing Anxiety: Breathing

Breathing is something we ordinarily do effortlessly and without thinking. We are now in the centre of a pandemic that primarily attacks the human respiratory system and whose main symptom is breathing difficulties. Now seems an appropriate time to consider how we can use noticing our own breathing to help anchor us in our roles as leaders.

External Video: Managing your physical symptoms using pacing

This short clip will explain what 'pacing' is and how it can be used to manage some of your physical symptoms including breathlessness, fatigue and pain.

Web Link: Medicines explained

This link will take you to an NHS page explaining how 100s of different medications work, what they're for, how to take them and possible side-effects. It's not exhaustive, but we hope you find it helpful. 

Web Link: Motability scheme

This link will take you to the website of the Motability Scheme.Motability is a national charity that raises money and provides financial help to people receiving mobility allowance who might otherwise struggle with their transport needs, whether it is a car, scooter or powered wheelchair.The website gives useful information and advice on who is eligible and what kind of help you might be able to get.

Web Link: NHS 24 Self help advice

This link will take you to NHS 24's self help guide on common health issues. The information and advice given is very general in nature, but you may find some of it helpful.

Web Link: NHS Choices (carer support)

This link will take you to the website of NHS Choices. This page offers a wealth of information and advice on the types of help you might be able to get after you get home, and how to access it.