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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: http://www.aliss.org/

This link will take you to the ALISS website (A Local Information System for Scotland). It is a fantastic place to find information on support for help with health and well-being in your local area.We highly recommend it!

Web Link: ICU Support Groups

Some people find it helpful to meet and talk with others who have been through similar experiences to their own. This is the weblink to ICUsteps website with details of patient and family support groups UK wide including Edinburgh and Dundee It will tell you more about the groups, who they are, what they do and when and where the meetings are held.

Web Link: ICUSteps: an after Intensive Care support group

This link will take you to the ICUSteps website. They are a charity set up and run by former Intensive Care patients,their family members and healthcare staff. They run informal "drop in" sessions for patients and families, and have developed a number of free booklets which you can download (some of them have been translated into several different languages). *Corona virus: All face to face meetings have been cancelled, but please visit the ICUsteps website for details on how...

Web Link: Information and advice on health and well being in your area

This weblink will take you to the Living It Up website.This is a great, easy to use website which provides some really useful links for health and well being in your local area. There's some useful information that will help take the fear out of using technology. There are various free "apps" to help you manage many aspects of your health and recovery, which you can download, free of charge, onto your phone. There is also some great practical and financial advice and...

Web Link: Lothian Phoenix Wheelchair Basketball

Lothian Phoenix wheelchair basketball takes place at Armadale Academy on Tuesday and Thursday nights from 7pm until 9pm. Please follow the link for more details. 

External Video: Louise describes her critical illness and the process of getting better

In this video clip, Louise a former Intensive Care patient talks about her experiences of critical illness five years on and the process of getting better and getting on with her life. You can read interviews,listen to voice recordings and watch clips of other patients' experiences of Intensive Care by using the link to a free website called Healthtalkonline: http://healthtalkonline.org/search/all/intensive%20care

Web Link: Managing Anxiety: Breathing

Breathing is something we ordinarily do effortlessly and without thinking. We are now in the centre of a pandemic that primarily attacks the human respiratory system and whose main symptom is breathing difficulties. Now seems an appropriate time to consider how we can use noticing our own breathing to help anchor us in our roles as leaders.

External Video: Managing your physical symptoms using pacing

This short clip will explain what 'pacing' is and how it can be used to manage some of your physical symptoms including breathlessness, fatigue and pain.

Web Link: Medicines explained

This link will take you to an NHS page explaining how 100s of different medications work, what they're for, how to take them and possible side-effects. It's not exhaustive, but we hope you find it helpful. 

Web Link: Motability scheme

This link will take you to the website of the Motability Scheme.Motability is a national charity that raises money and provides financial help to people receiving mobility allowance who might otherwise struggle with their transport needs, whether it is a car, scooter or powered wheelchair.The website gives useful information and advice on who is eligible and what kind of help you might be able to get.