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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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Web Link: Cycling for all abilities

This is the link for Edinburgh All-ability Bike Centre. They're based at Bangholm Outdoor Centre. The group offers people the chance to get cycling whatever their ability or background, using a range of adaptive bikes, trikes, tandems, side-by-sides and handcycles as well as standard solo bikes. The project aims to benefit adults with disabilities, older people who haven’t cycled for a long time and people who have never cycled before.It's free!

Web Link: Disability Snowsport UK

This link will take you to the Disability Snowsport UK Homepage, which has links to local groups. Disability Snowsport UK is a people-centred organisation with a unique sense of purpose: that anyone regardless of their disability can take part in and enjoy the thrill of snowsports. They are a membership organisation, and welcome anyone of any levels of skiing and fitness. They cater for complete novices to snowsports all the way to elite athletes.

Web Link: Discharge From the ICU

Text from site: This video offers five key areas patients and families should consider they prepare to be discharged from the ICU or hospital. It addresses the equipment you may need for daily activities at home, what medications you may need and common mistakes about medications, follow-up appointments, and what do if you are struggling at home.

Web Link: Driving

This link will take you to the web page of NHS Lothian's Driving Assessment Service. They offer an assessment service for people who want to start, resume or continue driving after an illness or injury. They are based at Astley Ainslie Hospital in Edinburgh, but can offer assessments in Dundee, Aberdeen, Inverness, Paisley, Irvine and Dumfries. Contact details are provided.

Web Link: Edinburgh Leisure

This link will take you to the website of Edinburgh Leisure.They have some really useful physical activity and health programmes.

Web Link: EdSpace - Stress Control (NHS Lothian)

Stress Control is a free course that can help you understand stress and how to cope with is. The course has been successfully run for many years in the Lothians, and is provided by NHS Lothian. It is a cognitive behavioural therapy (CBT) based self-help course, and can help you to manage stress better, and understand the connection between stress, anxiety and low mood. You don’t have to be stressed to benefit. It can help you to avoid stress from building up in future. Click the...

Web Link: Free Guide To Critical Illness, Intensive Care, And Post-Traumatic Stress Disorder (PTSD)

As a result of the current global health crisis, many more people than usual are having serious medical experiences. These include admissions to hospital with breathing difficulties, or transfers to critical care (intensive care) units. A significant proportion of these people will go on to develop symptoms of post-traumatic stress disorder (PTSD). We wanted to put together a guide to give information to these patients, and to those close to them. It discusses how they might be feeling,...

Web Link: Going back to work

This link will take you to the website of Healthy Working Lives.Although this page is intended for employers, it will give you some insight into your rights and your employer's responsibilities if you are thinking about going back to work or retiring early.

Web Link: Going back to work

This link will take you to the website of Healthy Working Lives. This page will give you information and advice on getting back to work after an illness or injury.

Web Link: Guide to Grieving Support Resources

Text from site: Grief is an essential component of human existence – a universally experienced phenomenon. Yet, how we process and deal with grief can be very different from one person to the next due to the survivor’s emotional state and circumstances related to the loss. To help make the bereavement process easier, a variety of grieving support resources are available, many of which are online. Below, you’ll find over 40 of the best grief-related resources on the Web...