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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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Web Link: Centre for Mental Health Resources

A guide to national mental health support and resources.

Web Link: Chartered Institute of Physiotherapists

A guide to national mental health support and resources.

External Video: Common issues after getting home

In this video, Anne talks about her role as a follow up nurse at Ninewells Hospital in Dundee. She sees patients after they've been discharged from hospital and talks about the common issues patients and families face during this time.

Web Link: Communicating With Your Relative In Critical Care

Text from site: Communication is being able to understand and share information through talking, writing, body movements or other signals. It is an important part of our daily lives, and lets us interact with other people. If your relative is in critical care, they might find it hard to communicate for different reasons. There are ways to help you communicate with your relative. If you have any questions or concerns about communicating with your relative, speak to their doctor,...

Web Link: Community Care Assessment

If you or the person you're looking after has difficulty with personal care (washing and dressing, for example), you could consider getting support from social services by having a community care assessment of your needs.The assessment looks at what type of services are needed. This might include a range of things, from from aids and home adaptations to visits from care workers or residential care.

Web Link: Couch to 5K

This link will take you to the Couch to 5K running plan on the NHS Choices website. It's a free "app" that you can download onto your smartphone, and it's designed to get you off the couch and running in just 9 weeks. It's designed for all ages and abilities-take a look and see what you think!

Web Link: Critical Care Recovery Book Club

Welcome to the Critcal Care Recovery Book Club! All of the books within this blog have been recommended by either individuals who have been in your position or by those that have benefitted from reading or listening these particular books. We hope that you can benefit from reading/listening to them too. And please feel free to comment your own thoughts below each post if you have read/listened to the book. If you would like to review a book for the book club please email...

Web Link: Critical Care Rehabilitation Manual - The Road To Recovery

Text from site: This manual is designed to help you recover in the quickest and safest way. It also has valuable information for relatives and friends of those recovering from critical illness as it is recognised that you are very much involved in the process of recovery. It has been written using research and information, some of which was provided by patients who have previously been in critical care.

Web Link: Critical Care With Suspected Or Confirmed Coronavirus

Text from site: This information is for people who have a relative or loved one in Critical Care at Guy’s and St Thomas’ Hospitals, with possible or confirmed coronavirus (COVID-19). We know this is a frightening and difficult time for families. Coronavirus has changed how we care for people in Critical Care. This includes caring for people with coronavirus, and for those who have come to Critical Care for other reasons. We are working hard to care for your relative, and...

Web Link: Critical Illness, Brain Dysfunction And Survivorship Centre - Delirium

Text from site: What is delirium? The word “delirium” is used to describe a severe state of confusion. People with delirium: Cannot think clearly Have trouble paying attention Have a hard time understanding what is going on around them May see or hear things that are not there. These things seem very real to them. Delirium also often causes patients to feel frightened, angry, lonely and ashamed. Delirium is common. About 2 out of 3 patients in ICUs get...