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Managing your own recovery

From listening to what other people have told us, it can be difficult to work out what to do for the best, in terms of helping the recovery process along after you get home. Many patients are surprised and frustrated by how long the recovery process can sometimes take.Some unfairly blame themselves for "not doing enough" or "not trying hard enough" while others tell us that "trying to do too much" can knock them back and sap their confidence.It's important to strike a balance.

In this section, we've included some information and advice on some simple things you can do to help you manage tiredness (fatigue), build your strength, deal with breathlessness, and generally increase your ability to do more.There are some useful short videos from physiotherapists who specialise in rehabilitation after Intensive Care. 



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External Video: How do I increase the amount of activity I'm doing

This short clip will explain how you can start building up your activity and exercises levels. For some people returning to normal activities may take a few weeks while others it can take months and even over a year. The important thing is to listen to your body and go at the right pace for you. This clip should help you understand how to do this. If you're struggling to increase you activity or exercise speak with a Physiotherapist who will be able to give you some guidance.

Web Link: How to find different community services across Lothian

Community services across Lothian are delivered by four different Community Health Parterships (CHP's). The CHP's are East Lothian, Midlothian, West Lothian and Edinburgh City. These partnerships between health and social care aim to provide comprehensive services in the community based on individual need. The services offered will depend on which region within Lothian that you live in but will include things like physiotherapy, pharmacy, dietetics, mental health services, stopping...

Web Link: Managing appointments

Some people find that they have multiple healthcare appointments after getting home, for example, with GPs, out-patient apoointments or physiotherapy. Although this leaflet is from a pain-related website, there are some useful tips on how to get the best out of your appointments.

External Video: Managing your physical symptoms using pacing

This short clip will explain what 'pacing' is and how it can be used to manage some of your physical symptoms including breathlessness, fatigue and pain.

Web Link: Medications explained

Finding a website that explains what provides easily understandable information about your medications is harder than it looks.This link will take you to the Boots MD website, which provides fairly easily understandable information about many common medicines; what they're for and what to look out for in terms of side-effects.

Web Link: Midlothian Community Physiotherapy Services

This link will take you the the webpage of the physiotherapy services in Midlothian which you will be able to access if you live in the area of Midlothian. The page will tell you about the type of physiotherapy services and how to access them.

Web Link: Motability scheme

This link will take you to the website of the Motability Scheme.Motability is a national charity that raises money and provides financial help to people receiving mobility allowance who might otherwise struggle with their transport needs, whether it is a car, scooter or powered wheelchair.The website gives useful information and advice on who is eligible and what kind of help you might be able to get.

Web Link: Muscle and joint issues: NHS Inform

This link will take you to the website of NHS Inform and their Musculoskeletal Zone (which deals with muscle or joint problems).They offer advice and information on upper body issues (neck, shoulder, elbow, wrist and hand), lower body issues (hip, thigh, calf, ankle and foot) and back issues. They also have an app, which you can download onto your phone, tablet or computer Please be aware that the information given is not geared specifically to patients who have spent time in...

Web Link: NHS 24 Self help advice

This link will take you to NHS 24's self help guide on common health issues. The information and advice given is very general in nature, but you may find some of it helpful.

External Video: Pacing for Breathlessness

This short clip will explain how a technique known as "pacing" may help feelings of breathlessness. You might also find the booklets on bodily positions to help breathlessness, breathing control and how to conserve your energy helpful in dealing with breathlessness.