Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: Motability scheme

This link will take you to the website of the Motability Scheme.Motability is a national charity that raises money and provides financial help to people receiving mobility allowance who might otherwise struggle with their transport needs, whether it is a car, scooter or powered wheelchair.The website gives useful information and advice on who is eligible and what kind of help you might be able to get.

Web Link: NHS 24 Self help advice

This link will take you to NHS 24's self help guide on common health issues. The information and advice given is very general in nature, but you may find some of it helpful.

Web Link: NHS Approved App: Beating Panic

Do you sometimes experience panic attacks or anxiety? Both can be very common after a stay in intensive care. Beat Panic is designed to guide people through a panic attack or raised anxiety using their phone. The Beat Panic app uses a series of soothing coloured flashcards with messages designed to help you overcome a panic attack in a calm, gentle manner. Follow this link to learn more about how Beat Panic can help you. This app is NHS approved and is available through the...

Web Link: NHS Choices (carer support)

This link will take you to the website of NHS Choices. This page offers a wealth of information and advice on the types of help you might be able to get after you get home, and how to access it.

External Video: Pacing for Breathlessness

This short clip will explain how a technique known as "pacing" may help feelings of breathlessness. You might also find the booklets on bodily positions to help breathlessness, breathing control and how to conserve your energy helpful in dealing with breathlessness.

External Video: Pacing for Fatigue

This short clip will explain how the technique of pacing may be used to manage any fatigue that you may be experiencing.

External Video: Pacing for Pain

This short clip will explain how pacing your activities may help to manage any pain that you are experiencing.

Web Link: Paths for All - Health Walk

Walking is described as the perfect exercise by health professionals and has many benefits. Walking requires no special equipment or expense and is the ideal way for most people to become more active. Paths for All is a Scottish charity that champions everyday walking as the way to a happier, healthier Scotland. Their website has some great ideas about ways to get walking including their Health walk groups. They organise free group walks every week. These are short, safe,...

Web Link: Physical activity (over 65s)

This link will take you to NHS Choices physical activity guidelines for older adults.

Web Link: Return to driving

Even if you didn't previously have a medical condition or disability that affected your ability to drive, a number of common Intensive Care related issues may affect your confidence or ability to drive. These include ongoing weakness in the arms and legs, poor concentration or visual impairments.You may have new medications which might affect your ability to drive.Speak to your GP or check with the DVLA if you're not sure whether you should be driving. This link will take...