Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: ICU Support Groups

Some people find it helpful to meet and talk with others who have been through similar experiences to their own. This is the weblink to ICUsteps website withe details of patient and family support groups UK wide including Edinburgh and Dundee It will tell you more about the groups, who they are, what they do and when and where the meetings are held.

Web Link: ICUSteps: an after Intensive Care support group

This link will take you to the ICUSteps website. They are a charity set up and run by former Intensive Care patients,their family members and healthcare staff. They run informal "drop in" sessions for patients and families, and have developed a number of free booklets which you can download (some of them have been translated into several different languages).

Web Link: Information and advice on health and well being in your area

This weblink will take you to the Living It Up website.This is a great, easy to use website which provides some really useful links for health and well being in your local area. There's some useful information that will help take the fear out of using technology. There are various free "apps" to help you manage many aspects of your health and recovery, which you can download, free of charge, onto your phone. There is also some great practical and financial advice and...

Web Link: Lothian Phoenix Wheelchair Basketball

Lothian Phoenix wheelchair basketball takes place at Armadale Academy on Tuesday and Thursday nights from 7pm until 9pm. Please follow the link for more details. 

External Video: Louise describes her critical illness and the process of getting better

In this video clip, Louise a former Intensive Care patient talks about her experiences of critical illness five years on and the process of getting better and getting on with her life. You can read interviews,listen to voice recordings and watch clips of other patients' experiences of Intensive Care by using the link to a free website called Healthtalkonline: http://healthtalkonline.org/search/all/intensive%20care

External Video: Managing your physical symptoms using pacing

This short clip will explain what 'pacing' is and how it can be used to manage some of your physical symptoms including breathlessness, fatigue and pain.

Web Link: Motability scheme

This link will take you to the website of the Motability Scheme.Motability is a national charity that raises money and provides financial help to people receiving mobility allowance who might otherwise struggle with their transport needs, whether it is a car, scooter or powered wheelchair.The website gives useful information and advice on who is eligible and what kind of help you might be able to get.

Web Link: NHS 24 Self help advice

This link will take you to NHS 24's self help guide on common health issues. The information and advice given is very general in nature, but you may find some of it helpful.

Web Link: NHS Approved App: Beating Panic

Do you sometimes experience panic attacks or anxiety? Both can be very common after a stay in intensive care. Beat Panic is designed to guide people through a panic attack or raised anxiety using their phone. The Beat Panic app uses a series of soothing coloured flashcards with messages designed to help you overcome a panic attack in a calm, gentle manner. Follow this link to learn more about how Beat Panic can help you. This app is NHS approved and is available through the...

Web Link: NHS Approved App: Catch It

An NHS approved app for anyone who is struggling with feelings like anxiety, depression, anger and conusion - feelings that are very normal during a stay in intensive care and after you have been discharged. Recovery takes time. Learn how to manage feelings like anxiety and depression with Catch It. The app will teach you how to look at problems in a different way, turn negative thoughts into positive ones and improve your mental wellbeing. Catch It uses cognitive behavioural...