Moving on

Recovery can sometimes take quite some time, although everyone is different. It is  fair to say that we probably know the least about longer term recovery.This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care.Also, much of the research that has been done has tended to use questionnaires which,although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice.We hope you find it useful.

 

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Web Link: Age Scotland (advice for carers)

This link will take you to the Age Scotland website.They provide a fantastic range of information and advice on many different issues such as housing, legal issues, saving money on your energy bills, eating well and common health conditions. Much of this is available in free leaflets that you can download or print off. Part of their services include an Information and Advice team. Their staff and volunteers specialise in answering enquiries from older people, their carers and...

Web Link: Ageing well activities (Edinburgh Leisure)

This link takes you to the webpage of Edinburgh Leisure and their section on Ageing Well and Active Lives. They offer a fantastic range of activities for people over 50, including allotment gardening, buddy swimming, chair based exercises, dancing, photography, indoor curling, singing and walking.Why not give it a go?

Web Link: Attendance Allowance

Attendance Allowance is a benefit for people aged 65 or over who need help with personal care (washing,dressing or eating, for example).Some patients need this type of help in the first few weeks and months after they get home.This link will take you to the NHS Choices web page, which will tell you more about what this allowance is, who is eligible and how to claim it.

Web Link: BBC news on the lasting mental health impact of ICU

This is a very short but relevant article from the BBC’s health page, outlining the findings from a recent UK study into the mental health issues some patients face after Intensive Care.

Web Link: BBC News page on support after patients go home

This is a very short but interesting and relevant article from the BBC’s health page. It outlines a recent UK study involving over 300 patients, the physical problems they faced and wide variation in support they received after they got home.

External Video: Bob describes his long term recovery

In this short video, Bob (a former Intensive Care patient) talks about his recovery over the months and years since his accident.

Web Link: Carers' Assessment (NHS Choices)

When someone ends up Intensive Care, close family and friends are also affected. They play a very important part in the patients' recovery after they go home.Given the importance of their involvement, the government has ensured that they have certain rights that, by law, must be met. Close family or close friends are often called "carers" by health and social care services, and most have a legal right to an assessment of their own needs. That includes things like...

External Video: Common issues after getting home

In this video, Anne talks about her role as a follow up nurse at Ninewells Hospital in Dundee. She sees patients after they've been discharged from hospital and talks about the common issues patients and families face during this time.

Web Link: Community Care Assessment

If you or the person you're looking after has difficulty with personal care (washing and dressing, for example), you could consider getting support from social services by having a community care assessment of your needs.The assessment looks at what type of services are needed. This might include a range of things, from from aids and home adaptations to visits from care workers or residential care.

Web Link: Couch to 5K

This link will take you to the Couch to 5K running plan on the NHS Choices website. It's a free "app" that you can download onto your smartphone, and it's designed to get you off the couch and running in just 9 weeks. It's designed for all ages and abilities-take a look and see what you think!